Good Morning Everyone –

Thank you so much for praying for little Ellie! We will not be posting updates here on the homeschooling blog anymore..  but if you would like to follow Ellie’s progress further I have started a blog at: http://sensiblemom.wordpress.com/ that you can subscribe to, or you can keep up with us on facebook.

Ellie had a great day yesterday. Her color was good, she rested very comfortably, and generally looked like the model patient!

We covet your prayer today over her being weaned from the ventilator. Breathing is a critical issue for children with Trisomy 18 and it will be the key to whether we can take Ellie home.

For more info about Trisomy 18 see this website: http://www.trisomy.org/

Also she was trembling a lot last night… although she was plenty warm.. so please pray that it is a non-issue and that it is not an indicator of anything.

We have decided to try to put her in a different hat every day to show that each day is new! You will also notice that we have accessorized her blankets!

Love to everyone at home and thanks for all of your calls, texts, messages and notes. If you would like to help with anything, please email Michele Norman at michelenorm@gmail.com. She will be fielding and coordinating all those requests for us.

This weekend will be very busy for us and we may not be able to have any visitors because we expect to have our children come to see us. Next week I think I can handle one visitor a day.

It is a pretty complicated process to get people into the NICU. We can only bring people in one at a time. I will be keeping an appointment book… so that I do not overbook myself. Part of the issue is that I am also pumping my milk for Ellie 6 times a day and that take 30-45 minutes each time. I will say that all of the visitors we have had have been a huge encouragement to us. The Lord has blessed us and strengthened our faith by each of you that have come to see little Ellie. When you see her in person it is so much more evident what a little miracle she is.

We love all of you very much and are so thankful for your love and support. I love seeing all of your comments, texts and messages… so know that I am treasuring them in my heart even if I don’t have a chance to individually respond to them.

Love to you all!

Chris and Charlotte